Community-Driven Research – A Platform for Engaging the Public in Health Research
Empowering Patient and Researcher Collaboration to Advance Health Outcomes
Our Engagement
01
How We Started
Estenda entered the PCORI Matchmaking App Challenge with a proposal to create an online platform that could crowdsource patient and caregiver insights, enable research collaboration, and support informed funding decisions.
03
Collaboration Model
Estenda worked independently to develop the prototype but partnered with stakeholders, including Regina Greer-Smith of Healthcare Research Associates, LLC, to align the platform with culturally appropriate methodologies and community engagement best practices.
The Solution
Technologies Used
Web-based application.
Secure data management.
Interest clustering algorithms.
Simple, intuitive UI for diverse user groups.
Processes implemented
Agile design and prototyping.
Real-world user journey mapping.
Iterative testing and UX optimization.
Customization
The platform was tailored to meet the specific requirements of patient engagement, recruitment workflows, and data privacy standards.
Challenges Along the Way
Obstacle:
Designing a platform that was both engaging and usable across varying levels of digital literacy.
Solution:
Estenda employed human-centered design principles.
Obstacle:
Meeting strict data privacy expectations while keeping the platform open and transparent.
Solution:
Robust encryption and secure architecture were implemented.
Obstacle:
Creating an experience that served both researchers and community members equitably.
Solution:
Thoughtful UX practices ensured trust and transparency.
Results & Success Metrics
Estenda received Honorable Mention in the national PCORI Matchmaking App Challenge, standing out for its innovative blend of user interaction, researcher tools, and scalable design.
Estenda partnered with Regina Greer-Smith, who also received Honorable Mention for her concept—the S.T.A.R. Initiative (Strategically Targeting Appropriate Researchers). Their combined efforts led to a mobile application prototype tailored to minority communities.
Increased visibility of community health needs.
Enhanced trust and collaboration between patients and researchers.
A blueprint for patient-driven research platforms.
Current Status
The CommunityDrivenResearch.com prototype continues to serve as a model for patient-researcher engagement platforms. Its influence can be seen in ongoing collaborations and adapted versions of the concept.
Estenda remains committed to developing tools that support inclusive health research and continues collaborating with stakeholders on platforms that empower underserved communities.
Key Takeaways
Research that begins with patient input is more relevant, actionable, and likely to drive real-world health improvements—especially in underserved populations.
With expertise in custom healthcare software and a deep understanding of patient engagement, Estenda delivers secure, intuitive platforms that promote equity in health research and care delivery.
Accelerate Patient-Centered Research with Tailored Technology Solutions
Let us help you bridge the gap between patients and research teams to drive impactful health outcomes.